Society for Mucopolysaccharide Diseases
Clinical Trial Support Coordinator/Administrator
Skills
1 month ago
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Important information
Contract type:
Permanent
Location:
Amersham, UK
Work mode:
Remote, Hybrid
Published on:
1 October 2026
What they need
About the role
We are seeking a Clinical Trial Support Coordinator to facilitate the coordination of travel logistics and reimbursement of expenses for patients with complex needs, travelling to participate in clinical trials across Europe, North and South America, Asia and Australasia.
This is a rewarding opportunity to join a purpose-driven team, supporting individuals and directly contributing to improving patients’ lives. You will provide dedicated support to patients and their carers, helping to ensure they receive the assistance they need throughout their journey.
There may be the opportunity to travel in the UK and globally to clinical trial sites to complete site visits. The purpose is to meet with the clinical trial team(s) and assess local accommodation.
About Us
Rare Disease Research Partners (RDRP) is a small, highly specialised organisation focused on rare and complex diseases, operating on a not-for-profit basis and owned by the MPS Society, one of the UK’s leading rare disease charities. Any profit made by RDRP is gifted to the MPS Society for the purposes of research, education and advocacy support.
You will be joining a highly skilled, collaborative, and supportive team. In addition to a competitive salary, we offer:
· Pension contributions
· Life assurance (subject to scheme conditions)
· 5 weeks’ annual leave (increasing after 5 years’ service)
· Additional leave between Christmas and New Year
· Access to an Employee Assistance Programme
Responsibilities will include:
· Provide in depth logistical support to patients and / or their carers to enable them to access clinical trials globally
· Work with patients, their carers, clinical trial sites and RDRP finance team to promptly reimburse study related expenses
· Manage telephone enquiries as appropriate
· Understand the complex needs of patients attending the clinical trials, and where required, act as a liaison between patients and clients when dealing with requests and queries
· Participate in training about MPS and other ultra-rare diseases relevant to the clinical trials that RDRP is supporting
· Build and maintain strong working relationships with clinical trial sites, clients, patients and service providers globally
· Provide guidance and support to clients during the clinical trial set up period, including helping with the submission of essential documents
· Take responsibility for the out of hours phone on a rota basis to manage out of hours emergencies across different time zone
· Always work within strict confidentiality guidelines
General responsibilities
· Adopt a positive approach to personal and professional development, attending training relevant to the role and engaging in regular one-to-one meetings and an annual performance review with your manager
· Attend conferences and events out of hours where appropriate
· Carry out any other reasonable duties as requested by your manager
Changes to responsibilities
· If for any reason it is necessary to make changes to the responsibilities in this job description this will be discussed in advance between the post holder and the supervising line manager
Essential requirements
- Eligibility to work in the UK
- This role requires a disclosure and barring service (DBS) check at the start of employment and regularly throughout employment.
Skills & Experience
Essential
· GCSE grade 4-9 (A-C) or equivalent in English & Maths
· Experienced user of Outlook Word and Excel
· Strong attention to detail and commitment to high quality work
· Highly organised and able to prioritise and manage multiple tasks with efficiency in a fast-paced environment
· Clear written and verbal communication skills
· Self-motivated, with the ability to organise own work to meet deadlines with minimum supervision
· Strong critical thinking skills, with a problem-solving attitude
· A team player with a proactive attitude and willingness to learn
Desirable
· Experience of using a CRM
· Second or third language
Applications
Please provide your CV with a supporting statement of no more than 500 words. Your supporting statement should include an answer to the question below:
What interests you about working in this area, and what motivates you to contribute to the practical support of patients and their families? Please use your own experiences, values or understanding to explain why this type of work appeals to you. We are particularly interested in what you think you could personally bring to the role, rather than a general description of the company or the job.
Kindly note we may choose to discuss your response to this question during any interview.
Closing date for applications: 25th October
Further Information
This role is full-time and based in our Amersham office with a hybrid working arrangement of a minimum of 2 days each week in the office. We are currently working Tuesdays and Thursdays in the office and the remaining three days working from home however flexibility is required to meet the needs of the business.
Disclosure & Barring Service (DBS)
The MPS Society is a charity that provides a range of care, support and activities for children and adults at risk throughout the UK. This is provided in several ways through our dedicated support service, annual events, patient expert meetings and conferences. MPS staff, trustees and volunteers may be asked to be involved in the delivery of its regulated activities and therefore will require an enhanced DBS check during recruitment and for this to be reviewed on a regular basis.
Job Types: Full-time, Permanent
Pay: £26,000.00 per year
Benefits:
- Additional leave
- Company pension
- Health & wellbeing programme
- Life insurance
- On-site parking
- Work from home
Application question(s):
- Are you eligible to work in the UK?
- Are you willing and able to participate in the rota for the out of hours phone?
- Are you willing and able to work from our Amersham office at least 2 days each week?
Work Location: Hybrid remote in Amersham HP7 9LP
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