Motor Neuron Disease Coordinator

University Hospital Southampton NHS Foundation Trust is delighted to offer a fantastic opportunity to work with us.

Job Title: Motor Neuron Disease Coordinator

Contract Type: Fixed Term

Contract Length: 24 months

Purpose for Fixed Term: Short term funding

This is an exciting opportunity to join our team for a unique opportunity as a Band 7 allied health professional to work within the friendly, supportive Southampton MND Care Centre team. The post holder will work with the existing Band 8 Lead MND Care Centre AHP coordinator. The post holder will work in collaboration with a diverse range of acute, community and third sector colleagues, including neurology, respiratory, nutrition, community therapies, pallia, community nursing and palliative care, across the Wessex Region to support and develop expert MND Care. The successful candidate will hold a caseload specialising in MND, attend specialist MND clinics, participate in the community MND MDT meetings, contribute to the MND improvement and development plan, including audit of the NICE standard and offer informal and formal teaching opportunities relating to MND. The Southampton MND Care has a highly successful partnership model with the MND Association, who continue work to fund part of our well regarded service.

This is a unique opportunity to develop and expand your skills in a care coordination role, whilst making a real difference to the care of people living with MND. You will receive supervision and mentorship from both the Lead MND Coordinator and colleagues within the Wessex Neurology Service to develop your skills and expertise within this role.

As one of the largest acute teaching Trusts in England, we offer learning and development opportunities to help you achieve the career you aspire to. UHS is rated ‘Good’ by the CQC and in the latest national NHS Staff Survey, we were in the top 10 acute trusts for staff engagement and for staff recommending the hospital as a place to work or receive care.

We support flexible working and will consider requests taking into account the needs of the service. UHS employees are able to access a range of NHS discounts, are entitled to a minimum of 35 days paid holiday (pro rata), and we offer a generous pension scheme.

Southampton is an attractive place to live and work situated on the south coast, with an international airport and direct trains to London. The New Forest National Park and beaches of the Jurassic coast are also right on our doorstep. The city offers living costs 30% lower than London and 17 schools rated outstanding by Ofsted.

We believe that using technology wisely shows strong time management and commitment to innovation. However, personalising your recruitment application to highlight your unique skills and experiences is crucial. Relying too heavily on generic, AI-generated content instead of drawing from your own strengths and accomplishments may lead to your application being rejected if multiple candidates present identical or similar information.

In this role, your key responsibilities will include

• Hold a clinical caseload of MND patients, working with Lead MND Coordinator and the wider regional team to provide supportive care.
• Act as single point of contact for patients with MND and their families within the activities of the Care Centre
• Undertake the established post diagnostic support visit to patients recently diagnosed with MND, offering post diagnostic advice, emotional support, clinical advice relating to NICE guidance and actioning referrals to the wider MDT for ongoing support.
• Attend and offer MND coordination support within the specialist regional MND clinic structure.
• Attend and participate in MND coordinator led MDTs across the region.
• Participate in the MND service objectives and clinical improvement plan, meeting the conditions of the MND Association grant, participating in management review meetings, , participating in the regular NICE audit and taking responsibility for delivery for defined service objectives.
• Represent the MND Coordination Team at relevant meetings.
• Provide MND specific training to colleagues at UHS and the wider regional team, offer advice and support regarding MND care as required.
• Collaborate within the service to support the MND research pathway and Senior MND Research Nurse.